Her treatment continued for more than a decade, until suddenly, in 2024, she received a phonecall from a doctor saying her chemotherapy was stopping.
“He didn’t have any reason as to why. He told me Ian Brown had retired – this was the first I’d heard of it,” Jones said.
Any questions would be answered by her new oncologist, she was told, but she was not given any name.
“I didn’t know what to do, where to turn, who to talk to because I had no support from the hospital during that time,” she said.
In May 2025, after independent analysis by neurosurgeons and radiologists, on behalf of her lawyers, she was told she had never had cancer of the brain at all.
She had actually been suffering from a tumefactive demyelination – an inflammation which is usually treated by neurologists who would prescribe strong steroids.
Jones got the news on a video call with her solicitors and the experts.
“When we found out there were just tears in everyone’s eyes,” said Tinsley, who is representing many of the patients.
